The Bionic Sound Project

this girl’s journey to sound

Snow, More Mix-Ups, and Incoming Freshmen Saturday, December 9, 2006

Woke up to snow this morning…had about 3 inches on the ground, but by the time I got outside, it had been plowed, so I didn’t get to experiment with the sounds. Basically it sounds the same, but there’s more of a musical “squelch” as your boots press down on the packed snow.

Yesterday, I mentioned that when I had the hearing aids, I didn’t like the sound and feel of snow squishing on asphalt/concrete, nor did I like walking on it. It still holds true. What I can’t figure out is how much of it do I hear versus how much of it do I “feel”? It was too noisy outside with all the environmental noises plus my boots didn’t help.

While waiting for my lunch today, I had the realization that I was hearing more with the CI than with the HA. Maybe I need to change the battery. Maybe I’m just becoming more dependent on the CI for listening. Either way, it’s neat to see the dependence change from hearing aid to cochlear implant.

AB sent us a bill for $175.00 for the headpiece. This goes back to the screw-up that was supposed to be taken care of on September 29th. *sigh* We sent it back, per the instructions we got over the phone, and it’s still an issue.

I’ve been having rushing noises in my ear since I got home and laid down to rest on the futon. It only happens when I move from side to side, and feels/sounds like the tide coming in, growing louder and louder till it crashes against the shore. It’s a bit uncomfortable, but I’m used to it since I lived with it for one month after surgery. Just weird to have it back after not having it for awhile.

We had an open house today at school, and all the Special Interest Houses were there to meet with prospective freshmen and give tours of our floors. At one point, a tour group of deaf kids and their parents came in, and I was looking to see how many had cochlear implants (about 75% of the group, mostly Nucleus, which is about right, considering the ratio between CI companies here on campus).

I was at the table for Photo House, and out of all of them, ours was the only one that had a deaf person at it (me). It was nice being able to talk to the prospective students and sign with them, whereas the other houses didn’t. It’d be nice to have a bigger mix, but the world doesn’t work that way. There’s still a cultural divide between the deaf and hearing worlds, but it’s getting better here. Much better than when I first set foot on campus several years ago. As for our house, I’m the only deaf member, and there is one that is hard-of-hearing but doesn’t sign.

Several members are learning sign through the ASL class, which is pretty cool, and I’m proud of them for doing that. However, I feel conflicted between being me, which is speaking versus signing to them to help them learn. The reason is because I’m not good at signing and speaking at the same time, because my hands can’t keep up with my mouth and brain! That, and I find it odd to sign to a person who can understand me when I’m speaking and doesn’t know sign!

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being sick sucks Tuesday, September 26, 2006

So, not even 2 months after having the 2nd surgery for the CI, I now have been exposed to some kind of viral flu-like sickness that has been spreading like wildfire, so I get the lovely sweats and chills. But I’m technically not “sick” since I don’t have a fever (taking my temp via mouth has NEVER worked on me).

So, the only physical symptoms I have are on the right side of my head. I have a swollen right sinus, and my eardrum is “sucked back” instead of bulging outwards from the pressure in my head. I have a headache around my ear/the front of my head/face. As for blowing your nose, you think they tell you not to do it after surgery, I now wouldn’t recommend it 2 months later.

In addition to all that loveliness, the dizziness is back…WITH the rushing/roaring noise I haven’t heard in more than a month.
Joy. I just love being sick, and being sent home from class.

Mandy and I didn’t do much today, but she narrowed down where I need to work on listening. So, P, B, G, and K, along with the vowels, is for listening practice. I do have to say I was amused when I thought the combo was “pee-yew” and didn’t want to say it out loud.

There’s nothing like a steaming cup of Tazo Passion Tea to soothe you. After that’s done, I’m off to attack my head with the Neti Pot and go to bed. Hopefully tomorrow I will be all better. The sickness needs to die.

 

Post-Surgical Tinnitus, playing the piano, and Music Wednesday, August 2, 2006

Still suffering from post-surgical tinnitus. Mom thinks it’s the fluid moving around in my ear, and that it means it’s healing up (which it better be, since it’s only been 2 weeks). My observation is that it gets worse when I bend over or move too fast.

It’s like a rushing, roaring sound, almost as if a jet plane is taking off inside my head…but it’s so odd, when you only hear it on the right side…so used to hearing sound bilaterally…will be happy to get the CI activated and hear ACTUAL sound instead of imaginary noise. And then there are times when I get the noise, and it makes me want to shut down completely for fear of passing out, because it can be very overwhelming. Just a few more weeks and hopefully it will go away along with the feeling of imbalance.

I find that the more I move around now, the better I can train my brain to get past the “unbalanced dizziness” feeling, and start feeling more normal, instead of resting up in bed. My energy level is also starting to come back, which is nice because I’m tired of being a slug. Just gotta finish the X-Files by the end of the summer!

As for residual hearing, I still have yet to hear anything, but I have been trying every now and then. I’m afraid of thinking that I can “falsely” hear it, which is kind of hard. I have a “memory” of what I sound like, so if I talk, I can trick my brain into thinking it hears myself speaking.

I’ve also started playing the piano again, and I really miss it. I’m amazed at how well I’ve been playing, for somebody who hasn’t touched it for about 2 years. Maybe I should start taking lessons again. Now I wonder how the piano will sound after I get the CI on.

Here’s the info on what to look for in CI-Compatible Cell Phones, located on page 4.

I’ve already started making a list of CDs I want to listen to after I get the CI activated and can listen to music. I know I’m definitely going to buy Christina Aguilera as my reward, because it’s CHRISTINA!

Jun 13 – The Futureheads“News And Tributes”
Jun 27 – Billy Talent“II”
Aug 15 – Christina Aguilera“Back To Basics”
Sep 12 – Basement Jaxx“Crazy Itch Radio”
Sep 12 – Justin Timberlake“FutureSex/LoveSounds”
Sep 26 – Janet Jackson“20 Years Old”
Oct 03 – The Killers“Sam’s Town”
Oct 24 – The Who – “Who 2” (maybe)

Just 5 more days.